Brittney Lindstorm, wrote a great piece and THE MIGHTY, published her. I have personally found through my journey with chronic and terminal illness, that there is an awful lot that gets ‘left out’, by those who manage my complex conditions. Be that; specialists, doctors, nurses, pain teams or others you access for your primary care.
I have found networking online with fellow sufferers invaluable, they save my sanity on the daily and understand me, my journey and my illnesses better than any medical professional. Your fellow sufferers will give you tips, tricks and be brutally honest with you when you need it most. Sometimes, that is the support you need.
To read Brittney’s great article on 7 Things Your Doctor Won’t Tell You When You’re Diagnosed With Chronic Illness, click this link.